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The last week of * (42) – what is success anyway? #Mondayblogs

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This is 43? Quite honestly, I’m not entirely certain how I feel right now. There are so many different things that I’ve been thinking about. How we measure success. What we consider ‘worthy’ work, when we think about our lives, and how we decide to measure what we’re doing. Like water over rocks, we often smooth away the knowledge we don’t like and find a way to let it settle. And time, like water down a hill, never stops.

Judgement – my own worst enemy

Self-judgement that is. And I think that’s true of all of us. We’re ALL our own worst enemies when it comes to deciding if we’re ‘doing what we’re made to do’. Which in itself is a loaded sentence. I really hate the whole “we’re human beings, not human doings” concept. It distils and negates a lot of the struggle we all have with the needs and responsibilities, the wants and the necessities we all carry and balance. I’m a human being. I am.
What I am right now?
A little bit stressed, a lot melancholy. Because I’m judging myself against a list of things that I just can’t expect to meet.
What I can say though is that I’ve achieved a lot that isn’t ‘obvious’. I was discharged from therapy, and told I’d successfully completed the work they wanted me to which is…awesome. I went into recovery care with the local unit over seven years ago. I moved two years ago, this week, to the unit the county over. I’ve put a commendation about Dr C. and my nurse, M, with my MP, I feel that strongly about their care. The whole NHS should be praised, for the last few years, of course, but the team that cared for me over the last few years especially, since just after my 40th birthday, are people that went above and beyond and made a real change to my life.

The grain silo, Being Human and more…

I’ve talked about these essays but never finished them. Some are actually in ‘And Miles to go before I sleep…’ and expanded upon. So, along with the retrospective coming for the rest of this week, and looking forward over the weekend (the blog is going to be busy), but I’ll be releasing the essays ‘The Grain silo’ and ‘Being Human’, along with the pre-order link for ‘And Miles to go before I sleep…’ over this week. I’ll maybe even get to talk about the major business project we’re launching. On Saturday or Sunday, I’ll release our sort of calendar, and aspirations we have. And they are aspirations. Not deadlines. Not must do’s. The pre-orders are fixed, but.. other than that, we’ll adapt. And the we in this case is my beloved, my family, my friends and I. Being Human isn’t to be alone. And I’m not.

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

Kintsugi and Levelling up #gamergal #mondayblogs

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So, firstly, I’ve spent the last week with shingles all up one side of my face. It’s not the most painful thing I’ve ever felt, but gotta be honest, it’s close. Because of this, my ‘October announcements’ post and this one have kinda rolled up.

The pot of my soul, cracked as it is

I’ve been talking about ‘levelling up’ a lot on my private groups. I’ve been talking about several things really, but I want to be clear. My major one is community. I talk – a lot – about #payitforward and that the #writingcommunity is very important to me. To do that, I’ve been thinking about levelling up my life.
I’ve lived my whole life accommodating various things. Mostly, I guess, psychosis. My mental health is a major element of my life, and even when I’m at my best, I’m… not? I live with imperfect cracks, like a little jar, a Kintsugi pot fixed with the things I find around me. My soul is visible in places – in others, it’s patched and safe. There are raw patches, that I guess I’ll eventually cover over. But that little pot is pretty tight right now. I’m managing to fill it up a lot more often, even if there’s…less space in there. We’re working through various things as a business team, because we do sort of have some plans.
For now though…

Substacking

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This is my newest project. I’ll be sharing snippets and more. But this Kintsugi thing? I’ll be talking more about it.
As for levelling up?
Because I’ve had shingles this week, I’ve not managed as much as I wanted to. But I’ve taken a couple of things forward. I’ve grabbed a Duotrope trial, to start working towards getting to my stories out there and building my name as a writer, but also to bring in a challenge. To ‘earn’ it, I have an amount I have to be paid for the pieces I submit, and that’s ok. It’s a low goal.
I’m using my diary again. I’ll be clearing my office space. I’m also getting Uni work done – I’m booked in for tutorials, and I’ve got my books ready to go. I’m a bit excited to complete my first year of Uni, and start moving towards my PHD.
And I’ll keep condensing down stuff to here. I’ll talk about that more in the coming weeks, but it’s pretty much a clean up and combine exercise right now ? And that’s me this week. Oh, and Kill Kit Killers is out on the 15th. That’s kinda exciting, and I know what the next three books are too! Woot!

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

In the wastes, on the curves

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bird s eye view of roadway surrounded by treesThe last few weeks have not been the best for me, but by far and away, the things that hurt the most are, if I’m honest, the way a few friends have reacted to my boundaries. And how, from there, pulling in to defend myself has been ‘abandoning’ them. And how that’s left me with issues with all sorts, from what I do from here to my religious outlook, to how I move on.  I don’t think I’ll address all of it here, it’s a bit complex.  The two bits I want to touch on are boundaries, and being out in the barrens.

Boundaries 101

I’m actually fairly odd in the sense that I don’t ‘like’ boundaries for myself. I feel that it’s very artificial to tell someone you ‘can’t something’ that isn’t basic human decency. And that, I hate to say, was my first mistake. The rank bitterness alongside that first mistake and trying to understand why people behave this way has been painful. Adding to the depression that was already settling on me, I’m really struggling to deal with anything right now, but, as I’ve been asked to write some mental health books if I get through this bout of crippling misery. But it’s made me evaluate a lot of things, and why my life isn’t ‘right’ and it all comes back to routine and boundary. Both of which, my brain seems to process much the same.

On the curves?

Honestly? There’s another word for what happens when I lose everything, whereas this is kinda like where I end up when everything is gone and I’m left to clean up a mess or three. And there are many versions of this place.  There’s the one I deliberately create when I need to move on from a bad place, and have to destroy it to cut ties.  There’s the one that happens when I’m sick and can’t tend my stuff, and then there’s this one… This version of it though is kinda worse. Because it’s a bit of both. In an irony, I’m honestly not sure even *I* really understand, when I’m sick and come off routine, that’s when the trouble really starts.  Free spirit and all that, I still need a pretty firm framework. And currently… I’m not sure I know what to do.  I feel horrible, if I’m entirely honest.  I’m not exercising or eating regularly, I’m not sleeping correctly.  I’m disrupted understandably, because of the changes in the house (we’ve still got our BED to replace).  And I feel a bit like a brat, if I’m honest, but we’ve changed so much in the last month and a half, and it’s been a lot of ‘I don’t really get the choice’ belonging disposal, as the garage flooded/was damaged.  Again, I’m well aware I’m lucky.  It’s not everything I own.  It was a LOT of my books though, a lot of stuff we moved and stored (I’m now learning that storing in the garage is not for cardboard boxes.  So, we’re converting what we are storing out there to plastic tubs.).  It was stuff I’d protected when I left my ex.  It was mine.  It’s gone now.  I don’t feel happy (Marie Kondo lied) – but I’m so overwhelmed, all I can really say was it was books, and some other ‘stuff’.  Because at some point, to keep dealing with the garage, I had to just stop paying attention.  So, I’m a little bit miserable, if I’m honest.  I do really feel like of everything that went, it was old toys and lots of my things.  It’s not *accurate*, but it’s been something I’ve learned over the last year – there’s a difference between what I know, what the reality is, and how I feel about it.  And that I’m not – really – right or wrong.  Just sad. We then did the conservatory, the dining room (converting it to my office, in part), and we got brand new couches (I’ll share some before and after photos once we’re all settled properly).  But, for someone that doesn’t *like* change, it’s been a lot for me to deal with. And it’s stirred up stuff I really don’t like. This is where I say ‘no more’.  Not no more change, just no more slipping schedules, no more ‘skip exercise, can’t be bothered’. No more accepting that I have to feel this way.  We do, most of all, get to decide how we react and change things, if we can, and quite honestly, I would be remiss in not trying.  I’ll be stuck within the limits of my spoons, of course, but I think some of this is…inertia.  So I want to deal with that. Maybe it’ll turn out all I have is the spoons for this, maybe it’ll turn out that I’m just tired and not doing as well as I could because I’ve accepted that.  I honestly can’t say on that score.

But…there’s more…

The thing is, this time, I’m going to talk about it, and whether what I’ve learned this year works, starting from about as close to ‘base’ as I get.  And, quite honestly, though I’m not in a place of complete ‘clear board’, I *am* close enough that I can maybe get this to work. I’ve still not decided exactly *how* I’ll be talking about it. Whether it’ll be a blog, or vlog, or a mix, but, as I’ve also been tagged to talk mental health for a series of books, and burnout is a real thing that often leaves people in barren areas a lot like this,  so maybe this isn’t quite so self indulgent as it feels, and I should be less self-conscious.  There are other elements to this, such as our complete inability to remain pregnant, which I don’t think is exactly helping my state of mind, but mostly, I’m just struggling to find my way, and I want to do something about that, even if that something isn’t what others think of when they think of the stuff I’m talking about.

To start?

To start, I’m going to do something about my wake/sleep cycle.  And eating regularly.  And, I’m going to see about exercising daily.  That’s the framework.  Everything else, like work and writing will still happen, and fit in around the other stuff… but….that’s what I’m going to focus on for a bit. Hopefully in time to start back at uni, who knows.

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

I don’t want to call it a ‘new normal’ but it’s a change….

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silhouette of tree near body of water during golden hour I hate the phrase ‘new normal’. Much like the fact that I don’t like mental health being classified as ‘normal’ or ‘abnormal’. Quirky language bit of my brain aside, I think making judgements like that is something that makes it difficult to accept that we’re all a little…different. There’s no one way to be.

But… ‘new normal’ and ‘freedom day’…

In the UK, they’re referring to something that may be (it actually has been postponed) postponed, called ‘Freedom Day’. In the UK, the day we lifted lockdown was literally going to be referred to (by our rather off-piste PM, I have to say) as ‘Freedom Day’ and all it really represented was us finishing lockdown and seeing if we see a new spike. Don’t get me wrong. Since March of last year, things have been really difficult for many reasons. But my life had been about lockdown before lockdown was a thing. I’ve not left the house on my own for…. well, up until last week, with a few very notable exceptions, I’ve not left the house alone since around 2015, I guess. It was insidious at first. I’d stop wanting to go into town unless I had a reason. Part of it, of course, was because of the really bad fall and learning to walk again, but by that point, we had a treadmill in the house. But I guess that’s around when I stopped leaving the house. By the time we were treated to the holiday of a lifetime (and I’ll be real, I’ve actually had two since mid 2015 – one in 2016, one in 2018) to Disneyland by my in-laws and hubby-to-be, they were making arrangements with the staff to make sure I wasn’t startled during large events, and I wasn’t able to leave the house. I wasn’t really working outside of the house either – I tried a few times but it never really…took, I guess.
My terrible mental health got worse too because I didn’t mesh with my care team and a few things were missed. By the time the pandemic was in full flow, it had kinda…snuck past me because I was dealing with my son’s kidney issues, and though he’d been cleared the morning we went into lockdown, there was something…almost unreal about what happened for those first weeks.

Privileged, I know

We weren’t badly affected by the furlough, though my own buisness didn’t qualify for any help, most of my time was actually spent supporting my young adult children through the various challenges that the pandemic was raising for their mental health, mine and everything else.
We are a year on now, and though a lot has happened, I actually think that I’ve come out of this a lot less ‘scathed’ than others, I’m not sure that any of us will know normal again.
And I don’t really know how to explain it. What I do know is that life – in all its forms are fragile and it’s hard to talk about it in terms that we all relate to because I can’t think of anything that is remotely like this, not in my experience. Whatever the ‘new normal’ is, I hope our PM understands that his cliched behaviour and almost childish soundbites aren’t helping. Sound and fury, signifying nothing.

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

Starting Monday armed…

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Well kinda. While we were home, Tempus mentioned that the lightsaber company he’d used and was really impressed with, was running a really good sale (he got his May 4th), so I sprung for one.
Believe it or not, that’s the same hilt, just one had a flash, one didn’t. Comfortable, CNC milled, mine is bronze/silver, while Tempus has a single tone silver one. They’re designed for a duelling system called Ludosport. While I may not join my partner for training, I do like the idea old designing a routine to exercise (and ness about). It is, of course, missing its blade. But only because I wanted to get this photo…
Feels appropriate from #Pridemonth.

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

On the road again…

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Well, I’ve kinda posted about it over on BooksbyKai, but, as most people that read this blog know me pretty well (I think), I’m pretty sure everyone knows that this month (mid-May to sometime in June) is referred to as #Kaiatus. Bad pun, I know, but I’m the person that runs Kailarks, so I’m sorry, but only a little. Anyway, #Kaiatus. I take time off over May, in part because May is a pretty busy month. We start with our anniversary (well, the 29th April really, and that’s our handfasting), then we’re usually prepping to go to Games Day (The UK Games Expo really), and celebrate my daughter’s birthday, plus May tends to be when I do my spring cleaning. Don’t know why, I just do. This year, I stayed around until a few days ago, because…well, we celebrated our handfasting, and then I had another professional milestone. 10 years ago, I self-pubished a few short stories on what we now consider to be mainstream platforms (my first self-pubbed book goes back to around 03/04, where I sold PDFs of my poetry from my blog/bi-polarbears. Yes, this blog. THIS blog is 17 in July. Bi-polarbears was 18 in March. It gets better…the Livejournal and disorganised site I kept that was basically this blog beforehand, dates back officially to 02, and earlier if you count the baby HTML sites I buit. Ahem.) Anyway, alongside that anniversary, my publishversary, I mean, one of the major projects I helped to found, and still work as an admin and the webmistress/managing editor for is also 10. I don’t think one would have happened without the other. That group is the Indie Author Group. ?

But now…

Well, now, I’m travelling home for a week. This will be the first time I’ve travelled, really, since last September/October, but, more importantly than that, it’s the first time I’ll have seen our family since Christmas 2019. We never got to travel when lockdown was loosened, Christmas 2020 was just a clusterf*ck for so many reasons (I had shingles, the youngest needed to self-isolate for CV19 contact, and to protect as many people as possible, the rules kept changing to the point we just couldn’t go home. Which I bitterly regret, as we lost my gran in February.) So, that’s part of why we’re going home. Another part is none of us have done anything remotely ‘holiday’ since….well, before Christmas 2019. Christmas 2019, I was kinda distracted with my son’s health and getting him to a place where we could support him. Tempus and I did go on a small trip late 2020, but it was his work and I was too sick to be left alone. Go me?

So…home?

Home, for those that haven’t been around for long, is Edinburgh. Shockingly, the gaelic speaking girlie comes from Scotland (anyone that’s seen my videoes will not be surprised. I have a recognisaibly Scottish accent). So that’s where we’re going. If I’m lucky, I might get to go get some reference photos for a book I want to write, but, if I don’t, the place I want photos of is easy to get to when were in Edinburgh, so it’ll keep. Mostly, I’ll be spending time with family, and, as I do when we travel (it’s a six+ hour drive), I’ll think, and do some planning. I’ve got a ‘Legendary’ Planner, which I’m going to be trying out. And I’ll be doing some decluttering and house re-org, planning books, and getting ready to do some study for Uni. AND reading some books that I’ve been putting off for a while. In short, I’ll be ‘off’. Buuuut…blogging more ? First though, home. I’ll be sharing in real time on my Instagram, and I’ll do roundups as I can. Be good without me ? The featured image? Well, one is me working while I go, the other?
That would be a view of Edinburgh, with an inconvenient lamppost.

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

A day in the disordered #atozchallenge

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  1. My AtoZ blogging challenge reveal 2021 #AtoZChallenge
  2. A for ‘are we there yet?’ #atozchallenge
  3. B is for Books – Walking off the earth #Finalchapterinthisbook #newbook #atozchallenge
  4. C is for Can do #atozchallenge
  5. A day in the disordered #atozchallenge
  6. E is for “eeek, I overdid it!” #atozchallenge

(again, as this is backdated, I’m writing this with the benefit of hindsight).

I did actually have this rather neat post about ‘a day in the life’, but, the last few days led to a bit of an epiphany.

You know there’s an Instagram bubble? I think when we write ‘days in the life’ that we sometimes make ‘blog bubbles’. So, instead of talking about what my ideal day should look like, and what it does when I’ve planned it out, I’m going to write about what my day actually is. And for the first time, I’m even going to include some of the mental health stuff I deal with – so this post could be mildly triggering.
I’ll be possibly alluding to self-harm, definitely talking about psychosis and depression and anxiety and insomnia. And I have a favor to ask at the end of this post.

A day in the disordered

I fell asleep at 11:30pm – a year of training and working with an app called Headspace and other meditation apps (honourable mentions to Digipill and Let’s Mediate (I have them on Android, they may exist on iOs), alongside my partner, which is now 80% of how my sleep works out.

Unfortunately, about 1:30am, I wake up again. I wake up to a voice, that I always hear. She’s my constant companion, and she’s very hurtful. If I’m lucky, I take a sip of water, I go to sleep again, and I might get to stay there for a bit. Most nights lately though, I’ve been waking up and finally falling asleep again at 5am.
The advice is, of course, if you’re not able to sleep in bed, to get up. But if I do that and she starts causing trouble for me. At her worst, she can trap me in the smallest rooms in the house. She’s the reason that I can’t get out of the house alone. She’s the thing I’m fighting back with my favor, but we’ll get there.

If I don’t get to sleep until 5 or 6am, I’ll either stay asleep till 8am, or 11am, or sometimes, I’m asleep till 2pm. And because of that, my day is always harder to plan for. How do I plan to be up at 9am, and exercised and ready to work, if I’m not getting to sleep until 6am? The answer is I don’t.
Insomnia is a difficult and hard to live with disorder – couple it with anxiety and psychosis, and though meditation helps, I’m frequently operating in arrears of sleep.

And that’s why I can’t talk about a day in my life. I have half an hour when I wake up that’s a set routine (get up, unplug and box tech coming downstairs with me, plug in anything, such as my Bluetooth headphones or spare batteries that need charged, wash face, rarely moisturise (I’ll be talking about that in S for skin routine, cause apparently, I’m annoying as all hell about that), meditate for ten minutes after making the bed, then come down. At night, I either go up before Tempus and grab a bath, then make my juice/waterbottle for my bedside, plug everything in, brush my teeth, get my Bluetooth headphones connected so that I can meditate, set up the book we’re listening to on Audible. Depending on how I feel then, I either read for 20 minutes, then meditate, or lately, I’ve just meditated, and used a sleepscape to go to sleep to. And then wake up again at 1:30am.

I can’t talk about this really here, but there is going to be an I for Insomnia over on bi-polarbears (the link won’t work until the post goes live ? )

And that brings me to a favor…

As many of you may or may not know, I’m an author. My major project this year is to talk about the fact that I live with a pretty severe (though not the worst, by a long shot) psychosis. I think I’m probably at the end of the ‘living in the community level of it,’ though, she’s quite hard to deal with. As an author too, it becomes difficult. I ‘hear’ my characters, and I don’t like that I hear and see things as well as part of my mental health.

On my birthday, I’ll be releasing a collection of mental health books. I’m not putting up the pre-orders yet, but I am asking people to subscribe to my newsletter, so I can start talking about the run-up to releasing them.
There may be a Patreon, there may not.

What I want to do though, is to remove some stigma surrounding both hearing voices and other psychosis, but I also want to acknowledge that authors do hear voices, and that *is not* as far as I’m concerned, is a psychosis. But I guess that’s between you and your healthcare team.

What I do know is that she’s stolen five years of my life. I’ll never get them back, and while I’ve done some things in there, I’ve not gotten everything that I wanted to do, done. There are other things, of course, that got in the way, it’s not just been mental health, but if I can remove from the whole concept of ‘we don’t talk about this, we’ll get into trouble’, then I will.
And I hope you’ll help me.

If you’d like to, ALL I need you to do is to sign up for my newsletter and join my mental health street team. That’s it. If you also want to share this post or the post about the project, I’d be delighted.

I’ll be talking about about this at P for Psychosis, because it’s important to me. Here, and at Bi-polarbears. I’ve avoided telling people I have issues such as psychosis for so many years, that it’s a bit uncomfortable for me, but I also know I’m in a good community, that accepts me for who I am, and knows me as I am, psychosis or otherwise. I hope to help others like me – because I think in the coming years, as we come out of lockdowns and the shadows of what we did to deal with the pandemic, that mental health is going to be a major issue – more major than even now, and I want to help people that need help. So I am.


The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai