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Depression

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I’ve been on about three false starts for this post, this week. And I’ve tried to write and explain this feeling… this weight for years.
It’s odd. I’m a writer. I should be able to explain this. But I’m depressed. It’s a hard time to write in the first place, and then, to write about how sad I am… I guess it makes sense that it’s hard to deal with.

Depression just is

Believe it or not…this is one of the millions of faces of depression. And it’s mine. That’s me on Saturday, after The UK Games Expo. My daughter and I had a ball, but I went to bed Saturday with the post-con blues, and woke up with full blown, not done this for a while, “oh, I thought I’d seen you for the last time, oh well,” depression.
I have CPTSD, I’m somewhere on the autistic spectrum, I have anxiety and psychosis. Depression is a MAJOR part of my life, unfortunately, but, I’m not particularly gracious about it. Depression isn’t something we need to be gracious about, but… as a mental health advocate, I kinda feel like a fraud posting photos and smiley selfies when I feel like rubbish. I do want to talk about that later – it’s important, and it’ll be linked from here when it goes live. But, I guess this is the other side of it. One of many sides, I feel. You won’t look at me and think ‘that’s a depressed woman’. Not unless you see me in what we call my ‘meltdown moments’. But just because I’m smiling, or interacting on social media, or Facebook, it doesn’t mean I’m ok. In fact, often, I find that’s when I know it’s coming. When I have to start forcing myself to open my laptop, I know things are getting hard. I know it’s really hard when I can’t find nice things to say to people when they need help. I know I have to step away when stupid incidents wind me up to spitting teeth, and I DO walk away when I’ve had a week like this, where I was bullied. It’s not overly common, but it does happen. Add all of it together – the post-con blues, bullying, sadness and inability to focus, and oncoming depression?
That’s kinda a perfect storm for me to get into real trouble if I don’t step away and let the darkness pass over me.

It’ll pass, but it’s not the blues

One of the conversations I’ve had when talking about writing about depression of any kind is that it just is. A friend that talked to me last night, when I mentioned I wanted to make this post but I was struggling with it, suggested that I should call it ‘I guess that’s why they call it the blues’. Other friends have talked to me about telling people about how I battle, how it’s a fight.
I can’t do that. It’s not that I don’t agree that people frame it their way. I just can’t frame it that way. Depression just is. It’s a part of my fabric, and there are, when I’m in less bad places, I guess, upsides to it. I understand exquisitely the depths of darkness and the heights of joy. I know it’ll pass. It always has in the past. It’s not easy to keep that in mind right this second, but, it does. I know it does.

Depression just isn’t….

It just isn’t something that goes away. As I’ve mentioned, I don’t really deal tell other people how to feel, but I’m not really comfortable with the stuff that comes with talking about depression. So, I’m going to say, if you’ve read this post, please remember three things:
  1. I’m currently *very depressed*. Be kind, because I’m not in a place where I’m very good at censoring myself.
  2. I don’t want to be ‘sold’ to. I meditate, I use essential oils, I read and write self-help books. I know all of the suggestions that I’m to follow. In the coming days, I’m going to start pulling back, start making space, start going back to basics. I’ll probably talk about that later, but less social media, more real life time basically sums it up. Eat properly, and go back to a rigid schedule till I feel more comfortable.
  3. Finally, if you don’t have anything nice to say, please don’t say it. No ridicule, no bullying and please, this is one of the few times I also ask that you don’t say ‘oh, I know how you feel’ and launch into why. Knowing others are depressed (which I *know*, believe me, I know) doesn’t help me. I will take advice without needing people to explain why they want to give it. But if you’re struggling right now, I’m sorry, I’m not the person to tell. It hurts more.

When I’ll be back

Usually I am gone for a week or two when this happens. Sometimes I pick myself up and get back into writing, or find something that I can be proud of, or things turn around. My mood is related – a lot – to what I do, what I succeed and how I spend my time. I’m hard on myself, as many people are. You don’t need to have depression to be tough on yourself.
But, living with depression when you feel like you’re failing…it’s so hard. Getting up and out of bed, cooking…eating. Even staying clean and brushing my hair…it’s all so many more spoons than it takes me to get to where I am just to sit down and do my work during the day. Work is…. daunting, terrifying, horrible. Even when I complete something, it’s never enough. Not for me. I’ve done some really amazing things for my clients, and I know I have because they’ve told me that I’ve done something amazing. (I moved someone from an Exchange server for Pete’s sake! It might not be a big thing, but I’m not Windows. I’m Linux. It’s a daunting thing to move 7+ years of archived emails. I discovered, as I researched that it’s not actually that difficult, it’s just…a bit…fiddly to get people swapped over for access if they’re not really technical, but we did it. People are happy. I’m even talking to people on the phone to do it.)
All of this is HUGE. I still feel terrible though. And a lot of this is my mindset. Some of it is worry that I’m doing stuff wrong, because I’m always learning new things. Some of it…I dunno. Some of it is just life. I feel like I’m not achieving much when I’m moving things around and reorganising my own stuff, which is what I’m doing now. But…I’ll be back. I’m going to keep working on my books, if I can. I’m going to keep the business running. I’m going to try and do what I can to help others, when I’ve got spare spoons. But mostly. I’m just going to work on resetting things. My meditation practices have slipped. I’m not exercising as much. I’m not eating more than once a day, most days. And most of all, I’m not interested in going and messing with my Cricut. We’ve got a new resin printer here and I’m not asking to unpack that. All I really want to do is lie in bed and wait till this passes. (and yes, I know that’s stupid. That I can’t just wait it out. I’m not very good at looking after myself, but food is one of those things I just kinda view as ‘I need to do this’ when I’m in this mood. I’m lucky, my partner looks after me, as do my kids, but seriously, don’t pillowfort till you feel better).

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

Trying, failing, trying again

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stack of books on white table After my last post, Is it Though?, I’ve been trying to… plot and plan and think through what to do next.
I did mention that I punctuate the phrase ‘if at first you don’t succeed. Try. Try again’, and I got feedback from people asking what I meant by that. So. I thought I’d explain that.
And maybe show off some new stuff at the end of the post 😉

If at first you don’t succeed. Try. Try again

One of the things that my wonderful psych team (Dr C and MW, my psych nurse) who I was discharged from at the end of last month, worked on with me, was my mindset. And this really does say everything about my mindset, in more ways than one.
It acknowledges, in part, that I’ll fall and get back up, over and over.
It acknowledges I don’t get it right first time.
But… unlike one of the comments (which turned into some serious nastiness, so was deleted) I had, it does not imply I’m setting myself up for failure. It does NOT imply that I expect to fail over and over. In fact, I’m often pleasantly surprised when I get it right faster than I expect, and I enjoy that.

It’s all about perspective

One of the essays in one of the new books announced this week, (Miles to go Before I Sleep, November 12th 2021) is called ‘it’s all about perspective.’ MtgbIs will be discussed in great depth later in the year, I guess, as an ongoing thing, but the perspective essay has a critical point in it.
“It’s really easy to say ‘I feel positive’ and be lying in some ways. Mental health isn’t binary. You can say ‘I feel positive’ and it really mean ‘but I’m still ready for it to go wrong’. It’s not a betrayal of positivity. It’s practicality. It’s just remembering that on that see saw, you’re supposed to be closer to ‘positive’ than ‘ready to deal with’.” And I think that’s what I try to explain to others. I am upbeat, positive and often, just chugging away. But I am also often prepped for things to need adaptation. I expect to fail, and have to keep trying.

And keep trying…

How about some good news now? I’ve got three books up on announcement for release right now. I’ve told my street team, and shared on my own personal profile, and we’re just getting my publisher blog sorted out, but… And miles to go, Before I sleep Kill Kit Killers – Book 1 And A House at War – Book 1, House Arrath and With Benefits You can read more about them on KushkaPress 🙂

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

Is it though? Thoughts on #failure

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If at first, you don’t succeed, try. Try again.

English Truism/cliché
(sidenote, I always thought the punctuation on that saying was pretty fluid. It actually reads more like a poem when I write it, cause I’ve always put the commas and full stops in there. Weird that my version actually talks about failing at least twice too. I’ll get to that later)

Failure – a loaded word

The last few weeks have been really…weird for me. I *started* making strides on becoming happier, healthier and more confident in my skin by trying to go for a walk outside and enjoying myself. I say started – last Friday, due to the completely thoughtless actions of a company that I’ll still say ‘remains nameless’ but is a social media scheduling program, who increased my bills by an eyewatering 1151% a month, this week has been a week of disruption, sadness, and annoyance.
And it didn’t help that I was fixing a stupid video problem that very few people actually see (that’ll go on my other blog, probably this weekend. What I’m hearing myself say right ow is I have a lot of blogs to work on. It’s not a happy thought, if I’m honest), but is key to a few clients who work on those platforms. And of course, I worked my ass off to fix it. But still…it’s been a rough week, and that’s meant…no walks.

I told myself that if I ‘failed’ at any point, I’d be gentle with myself – accept that it’s a ‘fact of life’ as it were when recovering that you’ll backslide, but I have to be honest. Although that language applies to me, if you stumbled on my blog out of context, you wouldn’t know what I was discussing was in fact not alcohol or drug-induced issues, but, instead, recovery from a mental health breakdown. And if I’m entirely open about that, it was a full-on ‘breakdown’. I spent a month refusing to leave our bedroom. Five years of being unable to leave the house alone. A LOT that I still don’t like to talk about.
I’ve still not gotten back to a place where the house is neat and tidy and everything has a place. I don’t think I ever will. I keep trying to put my work back together, and every little thing that knocks me off track is so significant. So hard.

When the language is all about judgement, how do you not judge?

I’m discharged from the team in question on Tuesday (hooray, I’m better…hang on), but the very last psych I worked with before I wrote this post, who I refer to as Dr C, finally said, a few Januarys ago, that he believed that everyone was a little bit on ‘the spectrum’, and in my case, I was VERY language focussed. To the point that I’ll get upset with language usage because people don’t use words precisely. It’s a form of control of course, but my psych says that he’d finally come to a conclusion that it wasn’t a power play. He thought I wasn’t/don’t do it to push people, to control them, but instead, to understand my environment. My ‘my brain won’t let this go’ is constantly stimulated. It’s language. In all it’s forms, really. What I do know though, about all of this, is that I’ve got a bias in how I perceive language. My language ‘understanding’ has an undertone of judgementalness. It’s how my brain works, and isn’t – really – about anything other than… I guess, when you grow up as badly bullied as I was, you need to find a reason for that. When you’re young, it’s most common to blame yourself. We think, unpicking everything, that my outlook is very much coloured by wanting to belong and not managing it because…children are children. I can’t blame the kids I grew up with (I can’t – many of them are in worse places than I ever ended up), and my family did their best. I just wasn’t… I’ll be blunt I guess. I grew up in an era where bullying was still viewed as character forming. Half of my teachers didn’t know what to do with me, and I must have been difficult for my family. I was sensitive, sad, often emotionally difficult, I guess. I began to prefer my own worlds to the ones outside. I didn’t interact well. If it happened now, as in, if I was a child/teen now, I suspect I’d have been put into a specialist education program, and I may – or may not – have turned out the way I am. And there I go again, judging myself. So. This week has been not optimal. Not even minimal. It’s been rough and hard and tiring.
But… I’m learning a lot of things. Always growing. So.
I own this one. I didn’t do any exercise this week. I have good reason for it, I was disrupted, and upset and had a really ‘poor’ week. But, I’ve been able to think, plan, consider, when I’ve not been too preoccupied with reclaiming money that shouldn’t have been removed from my account. It’s been a frustrating week, but I DID get those video fixes sorted, I am working through stuff with clients to get on with. The week, on the surface, looks like a failure. But really? It’s just been a week that hasn’t worked out. If, at first, you don’t succeed. Try. Try again.

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

When all you wanna do is pillow fort but you have to ‘adult’

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unrecognizable person sleeping under blanket I know this is an odd concept to raise for someone that’s a business owner and often works as hard as I do to advocate for others, who has raised two children to adulthood and when I think about it, survive what could be seen as serious negligence by my older psych team, but sometimes, do you wish you didn’t have to ‘adult?’

Adulting is overrated

I don’t mean by this that I don’t think I should have zero responsiblities. I’m just really tired of not getting ‘a win’ in the things that I do, not really. All of my planned treats, no matter how small, have either fallen through, or I’ve had to ask my partner to pay for them after all – which makes me feel bad. He doesn’t mind as much, but it’s a bit hard to talk to my kids about being adult and responsible then running to my other half and crying because life is hard.
And lately, I’ve been crying a lot.
I try not to focus on bullying, because it’s not a positive thing to think about and it gives them power, but often, I’m finding a lot of people when they are challenged on what they say, suddenly try turning the tables and creating the idea that they’re a victim. That you’re in the wrong.
Compound that by the fact that often, this is over hosting bills or whatnot, and you can see how it hurts me to have people treat me this way.

Reality…

Realistically, my company actually works, just about right now. I’ve got some work to do over the end of my Kaiatus to launch a few websites, but, we’re actually stable. Wire thin margins, but stable, so when someone starts complaining about their hosting bill, there is a bit of me that doesn’t want to engage. Another bit of me that knows I have to, because if I don’t, they’ll not pay. And a huge bit of me that’s wary, because I’ve been attacked recently for not considering giving away services free for the pandemic. I only really manage what I do because I’ve kept beta accounts with places that aren’t as great as they could be and finding ways to fix the shortfall, or doing the stuff that I need manually. But realistically, I’ve been out of spoons and upset for about a week now.
The thing is…I can’t really pillow fort. Next week sees the start of my graded exposure to the outside world. In laymans terms, that means for the first time in five years, I’ll be leaving my house and going for a walk…and trying not to throw up when I do. It’ll either be brilliant, or I’ll make it brillaint, but today was a day where I could have just done with hiding away and not needing to deal with the world. If I manage it though, Prime Day reward will be nice. I never get anything extravegant, but….treating myself to some new books for Uni or some additional research tools would be nice (cybersec isn’t a ‘cheap’ study area, Forensic linguistics even less, and honestly? I’m lucky. I’ve got access to stuff through my partner and friends). If not there, Humble Bundle always has cool books on AI.

See…I can adult

When I start thinking like this, often, my friends point out that I pull myself out of it. I’m #blessed to get to do what I do. And, yes, I am. It doesn’t change though when nothing is going right and no one wants to do as they’re supposed to, and you need the books before the end of the month, or you’re looking forward to a tiny treat that keeps getting postponed, that you feel this way. It’s still not the ‘correct’ way to think, but….rewards are sometimes good. When applied sensibly. I can’t do it any other way. And for those of you pointing out ‘I can ask…’ I can. You’re right. Lucky me again, but….why should my partner bail me out when I’ve planned and it should work? Like I said, I don’t like adulting. At all. 42 years old and I wish I didn’t need to. I’m just so tired of everything being uphill. And don’t ask me about books. Still waiting for my 100 ISBNs…

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

I don’t want to call it a ‘new normal’ but it’s a change….

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silhouette of tree near body of water during golden hour I hate the phrase ‘new normal’. Much like the fact that I don’t like mental health being classified as ‘normal’ or ‘abnormal’. Quirky language bit of my brain aside, I think making judgements like that is something that makes it difficult to accept that we’re all a little…different. There’s no one way to be.

But… ‘new normal’ and ‘freedom day’…

In the UK, they’re referring to something that may be (it actually has been postponed) postponed, called ‘Freedom Day’. In the UK, the day we lifted lockdown was literally going to be referred to (by our rather off-piste PM, I have to say) as ‘Freedom Day’ and all it really represented was us finishing lockdown and seeing if we see a new spike. Don’t get me wrong. Since March of last year, things have been really difficult for many reasons. But my life had been about lockdown before lockdown was a thing. I’ve not left the house on my own for…. well, up until last week, with a few very notable exceptions, I’ve not left the house alone since around 2015, I guess. It was insidious at first. I’d stop wanting to go into town unless I had a reason. Part of it, of course, was because of the really bad fall and learning to walk again, but by that point, we had a treadmill in the house. But I guess that’s around when I stopped leaving the house. By the time we were treated to the holiday of a lifetime (and I’ll be real, I’ve actually had two since mid 2015 – one in 2016, one in 2018) to Disneyland by my in-laws and hubby-to-be, they were making arrangements with the staff to make sure I wasn’t startled during large events, and I wasn’t able to leave the house. I wasn’t really working outside of the house either – I tried a few times but it never really…took, I guess.
My terrible mental health got worse too because I didn’t mesh with my care team and a few things were missed. By the time the pandemic was in full flow, it had kinda…snuck past me because I was dealing with my son’s kidney issues, and though he’d been cleared the morning we went into lockdown, there was something…almost unreal about what happened for those first weeks.

Privileged, I know

We weren’t badly affected by the furlough, though my own buisness didn’t qualify for any help, most of my time was actually spent supporting my young adult children through the various challenges that the pandemic was raising for their mental health, mine and everything else.
We are a year on now, and though a lot has happened, I actually think that I’ve come out of this a lot less ‘scathed’ than others, I’m not sure that any of us will know normal again.
And I don’t really know how to explain it. What I do know is that life – in all its forms are fragile and it’s hard to talk about it in terms that we all relate to because I can’t think of anything that is remotely like this, not in my experience. Whatever the ‘new normal’ is, I hope our PM understands that his cliched behaviour and almost childish soundbites aren’t helping. Sound and fury, signifying nothing.

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

F is for f*&k and other profanities #atozchallenge

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collage photo of woman
  1. My AtoZ blogging challenge reveal 2021 #AtoZChallenge
  2. A for ‘are we there yet?’ #atozchallenge
  3. B is for Books – Walking off the earth #Finalchapterinthisbook #newbook #atozchallenge
  4. C is for Can do #atozchallenge
  5. A day in the disordered #atozchallenge
  6. E is for “eeek, I overdid it!” #atozchallenge
  7. F is for f*&k and other profanities #atozchallenge
Actually, it’s not….really. Made you look 😉
I wanted to get your attention – what I actually want to talk about is language, but profanities, and our use of them, apparently dictates how linguistically intelligent we are.

Not quite yet…

I don’t quite buy into the studies that suggest that if we swear, we’re more intelligent. What I do agree with is if you can express yourself in varied and interesting ways, you are probably more intelligent, so it’s possibly a false indicator, as it was suggested in a 2016 study there was no correlation between profanity and the use of cussing and intelligence, but instead, it’s to do with the wish to extend vocabulary. I’m really interested in linguistics, so I thought that this was a phenomenon I wanted to start talking about it more. So, my quick post today is about swearing, and asking you guys what you think. Do you think it’s a sign of intelligence on it’s own, or do you think it’s more to do with whether you’re working on extending your vocabulary and finding different ways to express things? (also, I’ll be re-releasing ‘The Secret Language of Fiction’ edition 2 soon, watch this space! – well, actually, watch my book announcements page!)

The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai

A day in the disordered #atozchallenge

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  1. My AtoZ blogging challenge reveal 2021 #AtoZChallenge
  2. A for ‘are we there yet?’ #atozchallenge
  3. B is for Books – Walking off the earth #Finalchapterinthisbook #newbook #atozchallenge
  4. C is for Can do #atozchallenge
  5. A day in the disordered #atozchallenge
  6. E is for “eeek, I overdid it!” #atozchallenge

(again, as this is backdated, I’m writing this with the benefit of hindsight).

I did actually have this rather neat post about ‘a day in the life’, but, the last few days led to a bit of an epiphany.

You know there’s an Instagram bubble? I think when we write ‘days in the life’ that we sometimes make ‘blog bubbles’. So, instead of talking about what my ideal day should look like, and what it does when I’ve planned it out, I’m going to write about what my day actually is. And for the first time, I’m even going to include some of the mental health stuff I deal with – so this post could be mildly triggering.
I’ll be possibly alluding to self-harm, definitely talking about psychosis and depression and anxiety and insomnia. And I have a favor to ask at the end of this post.

A day in the disordered

I fell asleep at 11:30pm – a year of training and working with an app called Headspace and other meditation apps (honourable mentions to Digipill and Let’s Mediate (I have them on Android, they may exist on iOs), alongside my partner, which is now 80% of how my sleep works out.

Unfortunately, about 1:30am, I wake up again. I wake up to a voice, that I always hear. She’s my constant companion, and she’s very hurtful. If I’m lucky, I take a sip of water, I go to sleep again, and I might get to stay there for a bit. Most nights lately though, I’ve been waking up and finally falling asleep again at 5am.
The advice is, of course, if you’re not able to sleep in bed, to get up. But if I do that and she starts causing trouble for me. At her worst, she can trap me in the smallest rooms in the house. She’s the reason that I can’t get out of the house alone. She’s the thing I’m fighting back with my favor, but we’ll get there.

If I don’t get to sleep until 5 or 6am, I’ll either stay asleep till 8am, or 11am, or sometimes, I’m asleep till 2pm. And because of that, my day is always harder to plan for. How do I plan to be up at 9am, and exercised and ready to work, if I’m not getting to sleep until 6am? The answer is I don’t.
Insomnia is a difficult and hard to live with disorder – couple it with anxiety and psychosis, and though meditation helps, I’m frequently operating in arrears of sleep.

And that’s why I can’t talk about a day in my life. I have half an hour when I wake up that’s a set routine (get up, unplug and box tech coming downstairs with me, plug in anything, such as my Bluetooth headphones or spare batteries that need charged, wash face, rarely moisturise (I’ll be talking about that in S for skin routine, cause apparently, I’m annoying as all hell about that), meditate for ten minutes after making the bed, then come down. At night, I either go up before Tempus and grab a bath, then make my juice/waterbottle for my bedside, plug everything in, brush my teeth, get my Bluetooth headphones connected so that I can meditate, set up the book we’re listening to on Audible. Depending on how I feel then, I either read for 20 minutes, then meditate, or lately, I’ve just meditated, and used a sleepscape to go to sleep to. And then wake up again at 1:30am.

I can’t talk about this really here, but there is going to be an I for Insomnia over on bi-polarbears (the link won’t work until the post goes live 🙂 )

And that brings me to a favor…

As many of you may or may not know, I’m an author. My major project this year is to talk about the fact that I live with a pretty severe (though not the worst, by a long shot) psychosis. I think I’m probably at the end of the ‘living in the community level of it,’ though, she’s quite hard to deal with. As an author too, it becomes difficult. I ‘hear’ my characters, and I don’t like that I hear and see things as well as part of my mental health.

On my birthday, I’ll be releasing a collection of mental health books. I’m not putting up the pre-orders yet, but I am asking people to subscribe to my newsletter, so I can start talking about the run-up to releasing them.
There may be a Patreon, there may not.

What I want to do though, is to remove some stigma surrounding both hearing voices and other psychosis, but I also want to acknowledge that authors do hear voices, and that *is not* as far as I’m concerned, is a psychosis. But I guess that’s between you and your healthcare team.

What I do know is that she’s stolen five years of my life. I’ll never get them back, and while I’ve done some things in there, I’ve not gotten everything that I wanted to do, done. There are other things, of course, that got in the way, it’s not just been mental health, but if I can remove from the whole concept of ‘we don’t talk about this, we’ll get into trouble’, then I will.
And I hope you’ll help me.

If you’d like to, ALL I need you to do is to sign up for my newsletter and join my mental health street team. That’s it. If you also want to share this post or the post about the project, I’d be delighted.

I’ll be talking about about this at P for Psychosis, because it’s important to me. Here, and at Bi-polarbears. I’ve avoided telling people I have issues such as psychosis for so many years, that it’s a bit uncomfortable for me, but I also know I’m in a good community, that accepts me for who I am, and knows me as I am, psychosis or otherwise. I hope to help others like me – because I think in the coming years, as we come out of lockdowns and the shadows of what we did to deal with the pandemic, that mental health is going to be a major issue – more major than even now, and I want to help people that need help. So I am.


The blog of D Kai Wilson - The blog of D Kai Wilson - text by Kai